2020 Perinatal Data Collaborative

Compensation for all these options based on income levels!

Last updated: February 2021

Option 1: Fill out our SurveyMonkey (Spanish SurveyMonkey survey translations coming soon!)

The survey will take you about an hour, maybe less. At the end is a form to fill out regarding compensation for your time. Click image all to access survey

Option 2: Schedule 1:1 time with us and share your story. We will document and ask you questions.

Email srilata@thematernalcoalition.org or use this link to schedule time or click image

Option 3: We will be holding listening sessions partnering with various organizations across the Washington State. The planning is in process and we will keep you updated on when they are ready for launch!

 
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About the 2020 Perinatal Data Collaborative

Last updated: January February 2021

You can find the SurveyMonkey survey here. Community listening sessions will be held in person or over zoom. We are collaborating with communities and organizations across the state.

Why are we doing this?

  • Data is held by large healthcare systems, and government entities. To access them, we have to pay and they are expensive, inaccessible to the community, and delayed in their reporting

  • Data and outputs should be owned by community and not healthcare systems or government entities. Our goal is to return the story of birth outcomes to the community and for TMC to help be a conduit for that data.

  • We want to be reactive to the impacts of COVID-19 on birthing people and their rights in 2020. We want to vary data sources and instead focus on community organizations and community members’ direct answers.

  • We are collecting data on experiences of trauma, biases and impacts of historical racism during the perinatal period. This data is not often captured in perinatal data and therefore there isn’t a full image of the impacts of these traumas.

  • We want to elevate the impact of community-based organizations and how they support pregnant and parenting people especially through the COVID-19 pandemic.

What are we doing?

  • Asking community to complete our online survey to share their experiences in the perinatal timeframe.  This can be completed by yourself, or with a doula, community health worker, social worker, partner, family member, etc.

  • We are collecting data on experiences of trauma, biases and impacts of historical racism during the perinatal period. This data is not often captured in perinatal data and therefore there isn’t a full image of the impacts of these traumas.

  • Partnering with community based organizations to share the survey, help clients complete it and to share their programmatic data to capture this information.

  • We are varying our data sources. Instead of getting data from medical systems, we are partnering with community organizations and community members to collect community experiences.

  • We hope our data will inform better policy and funding so it’s more community focused.

What will we do with the data?

  • We will aggregate meaning, roll up into higher level data. This means understanding trends, impacts across different communities

  • We will use a data visualization software to output the data and show our findings. 

Who will have access to the data?

  • The Maternal Coalition staff and data team  who have gone through HIPAA compliance training.

  • Data will not be accessible to the public, this includes individual data points and the full data set. Only our findings will be publicly released without any individual identifying information.

  • You can request your data at any time

Is my data protected?

  • Yes we purchased an upgraded version of SurveyMonkey to ensure it was HIPAA compliant.

  • The data is stored on encrypted and secured servers that are HIPAA compliant.

  • We do not have permission to give the data set out to anyone. The data will be securely kept or destroyed by the Maternal Coalition.

  • At any time you can ask for us to remove your survey from the dataset.

Will I be paid for my time?

  • YES! We value your stories, time, and willingness to share them with us. We want to compensate you for your time and energy. There is a sliding scale based on income level.

If you have issues, questions, or concerns please email info@thematernalcoalition.org